gwr7800
Part of the e-furniture
Member of Portsmouth mes
Posts: 384
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Post by gwr7800 on Nov 10, 2015 12:21:27 GMT
Hi Joan I can only second Petes comments "don't give up " you get good days and bad days, from a personal point of view I've got another 10 years on you! I've suffered from rheumatoid arthritis for nearly 30 years had all my knuckles of my right hand replaced with plastic joints! Rest when it hurts just pace yourself! Easy to say sometimes it's very frustrating! Just be patient you will get there! Best wishes Chris
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Post by Doug on Nov 10, 2015 12:49:12 GMT
Hi Joan i agree with the above comments, dont give up pain is not an easy thing to live with but it is worth fighting against, myself i have two bad knees and a type three shoulder AC seporation (basically my collar bone has come detached) its very painful and there is no cure, i can no longer lift anymore than 10kg safely but i flatly refuse to give up on my very heavy hobbies and job, you adapt to live with it. stick with it your making something very unique and worthwhile. all the best Doug ( a wreck at 43 years old ;-) )
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Post by suctionhose on Nov 10, 2015 21:56:15 GMT
Since giving up in 1983 I've made seven models?! Can't live without it...
Indulging creative instinct is vital nourishment for life. Ask any 90 year old at a club.
Maybe a rest will do you good although it sounds like working with computers is what you do whether your loco or some other interest.
Maybe look into alternative interfaces from mouse and keyboard? I don't know what's available but many more options are available to people with disabilities these days.
Vamos! Animo!
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steam4ian
Elder Statesman
One good turn deserves another
Posts: 2,069
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Post by steam4ian on Nov 11, 2015 4:47:22 GMT
Joan
Please stick with us. pace yourself and adopt the cliché, work smarter not harder.
Get a touch screen or large touch pad, IMHO it's the mouse that causes the problem.
Get some physio so you develop muscles and techniques which work around the problem areas.
Regards Ian
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Post by jingerwarrior01 on Nov 11, 2015 11:51:36 GMT
Hi Ryan, I see this is your first post in the forums, so first thing let me say Welcome! There's a number of build threads in the forums that keep a lot of interest to me, and from which I have learned a lot. All of them deserve careful attention. I would suggest you to take a long tour through the forums. In any case, thanks for your words and encouragement. You may be interested as well on this thread that I opened to get some feedback about my boiler design: modeleng.proboards.com/thread/10990/gas-fired-boiler I suffer from some form of RSI (repetitive stress injury) in both my wrists caused by long days of computer use over decades as a software developer, which became much worse at a particular point since I started with Model Engineering. I am 50 y.o. Two weeks ago I received surgical treatment in my right wrist to repair a torn triangular fibrocartilage that should relieve some of my pain, as it was thought to be the main cause of it. But so far it is not helping, and my physical condition was already affecting my slightest daily activities, let alone the use of computers or workshop tools. So I feel now in a rather low mod, and I am even considering abandoning this project due to my health issues. So far, I have suspended all ME related activity except reading the forums. Hi Joan Thank you for welcoming me to the forum! All I can say is, "Don't abandon the project!". I think that what you have done is extremely innovative and brilliant to say the least. I am sure there are a multitude of model engineers eagerly awaiting your next post on Isfonells, as am I. As many have said already, take it easy, do not push yourself and just work when you can. It is people like you who we learn from and without which, the ME fraternity would suffer a great loss. I will be following your thread with much anticipation and wish you all the best with your health and RSI. Hopefully your recovery will go well. Kind regards, Ryan
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Post by joanlluch on Aug 13, 2016 8:26:58 GMT
I was ultimately diagnosed of RSD (Reflex Sympathetic Dystrophy) in January this year. Please google it. This is a rare condition which main feature is extreme pain in limbs. It generally starts in one limb and eventually spreads to all four. I currently have both hands and right foot affected. I am unable to walk for more than 20 meters and suffer from unbearable pain in hands and feet despite taking tons of painkiller drugs. I have some acceptable days and many very bad ones. Typing this is very painful. Unfortunately, the computer voice recogniser does not understand my speech when the language is set to English, so I can not use it when posting here.
I have not stopped my build, although it is now progressing at a much lower pace. I get some help from my brother in law to physically assemble parts, but I still do all the design and drawing work.
I wanted to share here what is new since last time I made a post. I think some of you will be happy to see it, and of course it is also a way to keep me distracted from the constant pain I suffer 24/7.
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Post by joanlluch on Aug 13, 2016 8:40:25 GMT
This is how the locomotive drawing looks as of today. LocomotiveAssembly by joan lluch, on Flickr The drawing is almost finished, only the boiler remains to be further refined.
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Post by Deleted on Aug 13, 2016 8:42:44 GMT
sorry to hear of your problems Joan, hope things get better for you....happy to hear you are still working on your loco....keep it up....these things are good for both body and soul.
kind regards
Pete
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Post by joanlluch on Aug 13, 2016 8:48:39 GMT
I finally took a classic approach for the burners. Instead of using sievert type burners, I chose to have a burner based on a home boiler. I located it on the bottom of the firebox in the usual way (similar to what the americans do with their propane based locos). These are some pictures and a video of burner testing in an open place. Cremador-Polidoro by joan lluch, on Flickr And a Video:
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Post by joanlluch on Aug 13, 2016 9:07:30 GMT
And these are some pictures I made recently of the Cylinders, Pistons, Valve, Crosshead and related elements (although most of it was already done before I became ill) Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Cilindres by joan lluch, on Flickr Pistó by joan lluch, on Flickr Pistó by joan lluch, on Flickr
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Post by Cro on Aug 13, 2016 10:25:04 GMT
Joan,
Very sorry to hear of the pains, my fiancée suffers from abdominal pain and has done for the last 6 years and still no firm diagnosis. She has struggled through the last 5 years of vet school with this and I know how hard it can be doing daily jobs when in such pain so I hope they find a suitable way to manage this for you.
Also lovely to see the development and the cylinders are fantastic, the machining on them is first class and a very interesting design.
Adam
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Post by Roger on Aug 13, 2016 20:56:52 GMT
Hi Joan, I was only thinking of you today, and was about to ask how you were. I'm so pleased to see that you're carrying on with your locomotive, it's a most interesting project. I'm sure it does help to have something to focus on, and to have goals, when you're feeling so unwell. It's great progress, and the parts look really good.
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Post by joanlluch on Sept 8, 2016 8:04:24 GMT
Brake pads as received from Shapeways Sabates Fre by joan lluch, on Flickr They are made to perfectly fit the wheel profiles including conical shape and flange round corner. Savates Fre by joan lluch, on Flickr Savates Fre by joan lluch, on Flickr Material is Spaheways "Steel". That's actually Stainless Steel infused in Bronze. Brakes in my loco are not meant to stop the loco while running, but to keep it in a standstill when not used.
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Post by joanlluch on Sept 8, 2016 8:15:56 GMT
More laser cut parts as received from the local service. Peces varies de tall by joan lluch, on Flickr They are for the following systems. - Braking levers and brake rigging. - Cylinder drain levers and rigging. - Reversing gear levers and other components. - Remaining parts for steam valve and cylinders. Some parts must be now submitted to the bending service and a few ones need some machining before they can be assembled.
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Post by Roger on Sept 8, 2016 9:46:51 GMT
I do love to see a big pile of pieces, I'm looking forward to seeing all this assembled. You've certainly been busy!
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Post by joanlluch on Sept 8, 2016 10:43:51 GMT
I do love to see a big pile of pieces, I'm looking forward to seeing all this assembled. Me too! There's some additional rods, pins and other parts that must be done on a CNC lathe before the whole thing can be assembled. The guy from the service I usually work with is on a week holiday. So I'll need to wait for him to return before he can make those items for me.
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Post by suctionhose on Sept 8, 2016 10:54:22 GMT
Inspirational Joan! It's very clear to me that keeping the brain busy is a vital component of dealing with difficulties in life. Keep on keeping on!
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Jono
Active Member
Posts: 15
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Post by Jono on Sept 12, 2016 8:32:30 GMT
Wow I love the methods you are using and the superb results, very innovative. Its a totally different set of skills than those used in most live steam builds. Sorry to hear of your illness. I would think that a interest like designing this locomotive will give some satisfaction in life when it would be easy to loose the joy of life.
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Post by joanlluch on Sept 12, 2016 10:27:22 GMT
Wow I love the methods you are using and the superb results, very innovative. Its a totally different set of skills than those used in most live steam builds. Sorry to hear of your illness. I would think that a interest like designing this locomotive will give some satisfaction in life when it would be easy to loose the joy of life. Hi scroggin. Thanks for the nice words. It's right that most traditional ME don't use CAD, but there are at least a few members here that are very proficient at it. I think the difference with my build is that I found that I do not get (that much) satisfaction at the workshop or at following existing plans, compared with making my own design and questioning things. Also, I don't really care about modeling, as long as general proportions look right, so I adopted a 'meccano' like approach at assembling, which makes things easier at the workshop. Keeping me active on something that I really enjoy helps me to distract from the stabbing pain that I feel all the time in my hands and feet, though I get often frustrated by the little I can do every day.
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Post by joanlluch on Sept 14, 2016 18:45:02 GMT
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